A new week

Last week was a bit difficult pain wise, I think the gastric flu stirred up my body and is causing a lot more pain.

The colder weather isn’t helping either, I love the winter but nowadays the winter doesn’t love me! The cold makes my conditions worse, I’ve started waking in extreme pain again, when I am sleeping which is difficult again.

I can’t seem to switch off at the moment, I lay there so tired that my eyes are burning but I just cannot switch of my brain and drift to sleep. Painsomnia mixed with insomnia.. Is not fun! But hey, it could always be worse and I can’t wake up! 🙂

It was a quiet week, my mum visited which was nice, and brought food for myself and son.. Bless her she does still love to feed people 🙂

My son has been buying new furniture for our home which is lovely, I haven’t been able to buy any big purchases as money is so tight. But he is insisting he wants to, and along with new cabinets he is getting a new corner sofa for the front room! We’ve always wanted one, the room is a perfect shape and I’ll be able to lay on it as sitting up is difficult. but alas I’ve never been able to buy one as even before becoming ill most of my money went in bills and daily living. But now we will not only have a new corner sofa, but one that goes into a double bed which will come in handy!

I’m touched by him doing this, he’s worked hard and saved his money up for these items and I’m so lucky that I have such a considerate, thoughtful son. He said awhile back that he wants to provide towards the home, I’d paid for everything for 19 years, brought him up and it was now his turn to do so, and look after me. He’s a great lad :,)

I’m still healthy eating and find it does help with my energy levels, I am not as sluggish now. I have the odd biscuit now and then but I find I cannot manage as much food or type of food I used to eat. I naturally go for a tangerine or apple now instead of chocolate.. Wow, I never thought I’d see the day that happened! Miracles do exist.. 😉

Another appointment over with

I didn’t blog yesterday as I was feeling really unwell.

My home assessment went well, I think! She arrived at 9.30am which I appreciated, not keeping me waiting for hours.
She was really pleased with all the photo copied letters and said they will make it so much easier during the descion making, and they will keep them on file.

She asked all the same questions that the form did, and a few of the answers were different as my condition has changed since I filled out the forms in February. But I also had proof of this and other things, such as I use a wheelchair, have and am deteriorating, my neuro problems and bedroom living through my doctors letter.

She did a slight medical at the end, but said she wouldn’t make me do the walking ones as it’s clear I can’t do them. She did sensitivity touch tests on my arms and hands, apparently I only felt a third of them. Then started doing them on my legs. Well, they were not having that. As soon as my leg was lifted off the floor they went into mad spasms that I then had all day, but she stopped straight away and said shall we try the left one. Of course that one started too! She left my legs totally alone and did it genuinely not as in, ohh you won’t do it but I can see you’re bad I’m not causing you more harm.

Then I had an eye test with similar cards as an optician but as my left eye has only had partial sight since Saturday that didn’t go great either. But ’twas fine and she understood.

Over all she was understanding, very empathetic genuinely so and very sympathetic. She was saying how isolating my life must be, how she’s keeping her fingers crossed for my claim and my home move happens really quickly.
She was not the dragon I was expecting and although she was here an hour and a half it didn’t drag nor at any point did I feel she was over bearing or not believe me.
So just the wait now to see if I’m accepted, it can take up to six weeks so I will have to just be patient, the worse of it’s over.

My eye pain was pretty bad yesterday, which caused a massive headache and then my pain kicked in and my muscle spasms due to the exam. I took myself to bed and eventually fell asleep until the evening, waking up feeling a lil better but still not great. So I was up until quite late, well early in the morning until the symptoms eased enough to enable me to sleep.

I have no appointments today, yay! Tomorrow is my x rays, ultrasounds and bloods so I’ll be at the hospital for a few hours. But that’s tomorrow, today I am taking to rest and recuperate a lil. Then after Wednesday it’s just a vitamin D injection appointment and that’s it for a month or so. I’m looking forward to the breathing space, it’ll be nice not to be constantly at the hospital and not be constantly examined and tested on 🙂