Natural medicine

I’d like to start this blog by thanking everyone who read, liked and commented on my last post. 

I was overwhelmed by the response and very touched, thank you so much 🙂 

It’s been a lil while since my last post as my eyesite and neuro problems have been pretty bad. It’s difficult to concentrate or think to write anything longer than a text or picture post. My mind gets so fuzzy and confused. 

I’ve also been on more antibiotics for my flu that I’ve had for months and sinus infection. My dr has put me forward for a sinus tissue scrape op as my MRI also showed mass tissue in my nasel tubes. I’m willing to have it done, no matter how much it’ll set of my conditions. If it stops my constant sinus infections and flu I’m going to give it a whirl. 

I have decided to try natural remedies in the hope they can ease some of my issues. 

I’ve started eating really well again, Greek youghurt too and I haven’t eaten youghurt since I was 10! 

I’m starting by trying to eat foods that are good for energy and nutrition. I have found chia seeds too, just a spoonful on anything I eat is apparently really good for you energy wise, something I could really really do with more of! 

I am also going to try acupuncture for my pain, I’ve researched and found a place that does it for ME and fibro so I will book the appointment in a couple of weeks. I can’t do it right now as my body is too poorly to get there, but I’m determined to try! 

I don’t think by changing my diet I will be cured, so many people say how they’ve been ‘cured’ by healthy eating.. If it really was that easy then medical science and professionals would be giving us fruit not meds and there’d be no one suffering with the many different chronic illnesses out there. What a wonderful world that would be! 

I’m doing this to try and get more body energy and ease my pain which is through the roof at the moment. 

Every millimetre of my body hurts day in day out at the moment, from my toes to my hair roots. My shakes are back and my body muscles so swollen and painful, I’m now bruising outside on my skin from the pressure inside. 

I’m better at working with my conditions these days, listening to my body and not being silly trying to do things that I’ll suffer from. But when you’re in this much pain and muscle locking anything you do is too much. The act of getting into bed, or moving at all sends the pain and muscles screaming through your body. 

It’s ridiculous, maddening and it’s depressing. 

Chronicpain is difficult to understand unless you have it. The ‘normal’ pain people have, such as achy, hurt yourself, pulled a muscle pain is just the tip of an iceberg compared to chronic 24/7 pain. 

It affects everything, your movement, sleep, eating, toilet trips, dressing.. Literally anytime you move or breathe it hurts so badly your body can shake and you can be sick from it. 

I’ve had pain for years, which  now I know it was due to my chronic conditions. My doctors now think I’ve had these conditions for at least ten years, they got worse over time then bam, my body had enough and  disabled me a couple of years ago. 

I thought it was normal, the every day aches and pains I had. But my pain nowadays compared to then is minute, and I would love to swap back to that. 

Hopefully my new diet will help. I’m not expecting miracles, but it’s worth a try. I’m at the point I will try anything to help now, well anything within reason. I don’t want scammers or people asking for money claiming their remedies will cure me! No thank you very much, you can stay out of my mailbox and away from my blog. 

I’m unwell, not stupid. 

🙂 

Dr on the warpath

I love my Doctor! 

I spoke to her on Tuesday and she got very annoyed and angry that I’ve still not seen the neurologist again as I was supposed to this month. That his letter to her dismissing my diagnosis’s and health and the meds and care I’ve been given was as dismissive as when he spoke to me. 

That my tests proved I’m half blind in my left eye yet he’s not seen me again as he should’ve done this month. 

She’s writing to the hosp asking for the next available appointment for me and tests and not specifically with him. 

The sad news that’s she’s leaving was a shock to me, as she’s been so good to me and brilliant at sorting appointments meds care for me. We chatted a bit about why she’s leaving and she’s not happy about it but has to due to personal reasons. I’m really going to miss her, not just as my dr but the friendship we’ve built up and nattering about non health problems . 

She’s promised to hand me over to another dr in the surgery who has some experience with chronic illness and also to talk to her about my history, current issues and that I need special care and home visits. Also that they will need to chase up ignorant ‘specialists!’ :,) 

I’m feeling happier that something is going to be done about my ongoing neuro and eye problems. My dr is asking for an MRI, CAT scan, brain probes and spinal scan. Hopefully this will give me some much needed answers! 

Plus, once these tests and results are done I can be seen at Bath hospital for pain and rheumatic diseases as an out patient not an in patient as was first arranged. She’s arranged it for me and I am incredibly greatful for this. 

So fingers crossed the next couple of months will be full of answers and the right care! 🙂 

Dumb numb brain

My health is still on a better keel, it’s been four days which to me is like a year! It feels good to have my body co ordinating together more instead of my limbs doing their own thing. 

My brain though.. Well, I have no idea what is happening in that teeny thing 😉 

Seriously though, it is one of my worse symptoms, the neuro damage that has and is still damaging it. 

I feel as though my IQ has dropped to the lowest points, and I cannot think clearly at all. 

My memory is shot, I am starting to forget things in the evening I have said/done in the morning or afternoon. 

I’m still forgetting what objects are or what they’re used for. I couldn’t for the life of me remember how to make a cup of tea yesterday. I was stood there holding my mug without a clue of what to do next.

 That scared me a little.

I’m used to not remembering what cutlery, blankets, other objects are but to totally forget how to make a drink I live on and make a lot was a bit of a shock. 

This week my friend ‘phoned and said I’ve not heard from you about what time to pop over today, and I had no idea what he was talking about. He said I’d discussed him coming over a couple of days before, and I checked my texts and I had indeed done so. But I had and have no recollection of it. 

My mum went to a friends wedding last weekend and despite me knowing about it for a few weeks before and wishing her a good time an hour before she went out, by the next day I had no recollection of the wedding or our conversation about it. 

I can’t add properly anymore, it just becomes a jumble of numbers. I can’t read something without either struggling to remember what the words mean or what it was about. 

I am now forgetting people’s names. Seriously, I forgot my friend of 20+ years. I had to look through my phone and then I still couldn’t remember what name was his. Or what half the peoples names were and who they were.

That scared me a lot. 

I’m in a constant haze of confusion and trying to pretend I’m fine and having conversations that I’m struggling to actually create a sentence that makes sense. Laughing off the silly things I do or say or forget and making a joke out of it. But deep inside I am confused and alarmed. 

I don’t know if the blindness in my eye and constant 24/7 throbbing headache is causing this increased  neuro damage or it’s my swelling brain, or both. 

I feel dumb, low in intelligence because I just can’t figure anything out as quickly as I used to or at all. I’m not saying I’m brain of Britain but I’ve certainly never been so unintelligent before. 

It’s odd, and I do not like it. 

I feel as though I’ve lost the ability to mentally function in a ‘normal’ way and spend my days and nights in confusion of what I’m doing, where I am, how to create sentences, think clearly, remember anything at all. 

This is not ‘brain fog’, that term I hate as it doesn’t nick the corner of the damage neuro damage causes both physically and mentally. 

I’ve no idea what it is but I’m seeing my dr on Monday and I’m going to mention it to her. 

That is If I remember to take my pre written symptom notes I take to all appointments, or even remember that I have this problem at all.