OT visit and house move

So my OT turned out to be so nice and helpful! She understood and M.E and Fibro which was brilliant, so many ‘professionals’ don’t and I feel extremely lucky to have an OT who not only understands what the conditions are but also how they affect you. She said I have it severely don’t I and then went into how my home is unsuitable for not only my conditions but my mental health due to living upstairs, the flat being no way adaptable for a wheelchair and being housebound. She said I need to be moved, somewhere that is open planned, big enough to cater to my wheelchair and somewhere with a front or back garden so at least I can get into either in my chair and not be trapped inside 24/7. So I agreed and she is writing her report and sorting the paper work out and in six weeks I can begin bidding on propertys on the home choice website. I knew in my heart I would have to move, the stairs alone have caused many a fall since becoming unwell and it isn’t suitable anymore. But haven lived here for so long it will be a wrench to leave. It could take up to a year to find a suitable property so it’s not right now, but the ball is rolling. The biggest wrench of all is that my son is going to stay here and take the tenancy fully over. I knew this could be a possibility and fully understand him wanting to do so. I support his decision, I will not stand in the way of it. He is 19 going on 20 at the end of the year and he has been talking about moving/ having  his own place for a lil while. So me signing over the home he grew up in is a better way of doing things as it will be fully furnished and he already pays rent etc.. He knows everyone in the area and his uncle lives across the road. It’s an area he was brought up in and he feels secure here. Plus I will be moving as close to my parents as possible and probably have a cater come help me so he doesn’t have to worry about me. He has his own life to lead and I will never stop that or make it difficult. He is mature enough, very capable and I know he will be fine. He’s had to cope with a lot more with me being so unwell for so long. Yes it will be hard to not be living with him but everything changes and this is just another situation that I will adapt to. I have never tried to tie him to my apron strings or would make him feel he can’t lead his own life the way he chooses. He will be very close to hand and we will never lose the closeness we have. It’s usually the child that moves out, it’s the total opposite with me going but I have never done things by the book so hey, it’s not unusual in my pattern of life. It will take six weeks for all the paper work to go through and in that time I can adapt to the thought of it all. It’s a huge life change, but one that is needed so with that in mind I will come to terms with it eventually. I must be honest and say these viruses on top of my other conditions have really knocked me and my body. I am hardly sleeping, my body is in more pain and the stiffness in my joints are very very bad. I have been sick several times purely due to temperature and pain. I feel wiped out and exhausted by all of it, I thought I would feel better after a few days but I didn’t take into account that any virus makes everything 100 times worse, but now it’s literally painfully obvious. I am doing as little as possible, but even that isn’t helping as the symptoms are swirling away inside me making even laying down uncomfortable and my body throb with aches. I will keep on top of all my meds, my antiabiotics and continue to drink lots to help me not to choke. I need to phone my local council so I will have to do that today, but anything else is a no go. Hopefully tomorrow I will wake feeling better, and can start doing the paperwork needed for the home move.. Hopefully, maybe, fingers crossed! 🙂

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Devil’s grip

So, the doctor came out and I have a severe sinus infection and devils grip! Honestly it made me laugh when he said that, as he intended it too. It’s a fibro pluerosy virus which makes the muscles swell in the chest and back making it feel as though you are being inwardly squeezed and causing a lot of pain, hence the name. I am on antiabiotics and I am glad I phoned the Dr because it would’ve got worse. The Dr who came out is the one who people shy of seeing as he is very abrupt and can be very bad mannered. He was as nice as pie to me, smiling and joking at his 6ft 5 height making me feel like a dwarf! He’s ok if you’re genuinely unwell but literally shoes you out of his room if you’re faking. Which is fair enough in my opinion, people who pretend to be ill really annoy me, especially now days.

So it’ll take a week or so to go, hopefully. The antiabiotics will take a few days to kick in which isn’t great for the OT visit tomorrow. I still need to write down a few things to ask her about, and tidy my home up. Downstairs is spotless thanks to my son who is doing a brilliant job of keeping it clean and tidy. I think I am going to have to put up with the messy bedroom as I really don’t feel up to sorting it out. A quick vacuum will have to suffice, I will have to just accept that and stop obsessing over it. There are other more important things to think about.

I really am feeling rough today and will try to nap at some point. I’ve been up since 2.30am I woke because of the spasming in my sides, the devils grip.. Ha. At least I have managed to take my antiabiotic and morning meds early though and that’s good. If I do nap I don’t need to worry about missing them. I try never to miss taking them, I take so many spaced throughout the day that it is difficult to keep track of. But I notice if I’ve missed some and don’t want to risk that with these viruses on top. The Dr also told me to take lots of water with my meds until virus has gone as the swelling inside could make it harder for tablets or food to go down. So here’s to using the bathroom twice as much as I already do, which is a lot so maybe I should just camp up in there and when the OT visits at least my (bath)’room’ will be tidy… 😉

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