Symptoms settling down?

It’s been while since I’ve written, due to the bad vision in my left eye and headaches they cause. But I will soldier on no matter how many days it takes to complete this blog entry 🙂

I don’t want to curse myself, but in the last two weeks my conditions and symptoms seem to be calming down a bit! Even despite my ever on going ear and sinus infection which I’m now on penicillin for a week as the antibiotics didn’t work.
But, regardless of that I have been feeling o.k, no major seizures, spasms and joint locking.

I’m still in a lot of daily pain, but because the other symptoms aren’t as bad I am coping with everyday things better. My son, partner and family have noticed the difference, I am only slightly limping instead of swaying as I walk.

This could be the very long awaited ‘good period’ instead of constant relapse. Whatever it is I am feeling better, happier and more productive.
Long may it continue! 🙂

My everyday life is also running smoothly, touchwood!

My son and I have bought new furniture and bits for our home, and yesterday I ordered my much needed new bed. I’ve had my current one for many many years and it has become incredibly uncomfortable, difficult to sleep on. I’ve opted for a memory foam mattress bed, which apparently are good for chronic condition sufferers.

As I spend 80% of my time bed bound I decided to splash out and get acgood matteress and also storage drawers so there is less clutter in my room, such as duvet covers, christmas decorations, clothes. Having the extra room will be great, spending so much time in my bedroom makes it is important to make it as cosy but as practical as I can.

My friend is putting a shower in for me soon too which I appreciate. It’ll be easier for my son in the mornings, save time on running a bath. And for me it’ll make it easier to wash my hair which is a battle every time I do it. I mostly wash it in the bathroom sink as I can sit on the corner of the bath which helps. But the lifting my arms over my head and awkward position plays havoc on my body so using the shower head instead will cut down the arm strain and spasms I get from over exertion.

I have stopped fighting my conditions and am now working with them.
I know my limitations and I am now very aware that the energy I used in fighting could be used in bringing more practical about my conditions and their effects in me.
If I can’t do something then I can’t, I’m slowly but surely accepting that. If I find something difficult I try to look from all angles of the problem and try different ways of making it easier to do.

Thinking about it, this could also be contributing to my improvement, the presence of better energy. I’m not pushing myself, raging against my body or mind. I’m much more relaxed and practical now and it seems to be helping.

I’m still not sleeping well and this is a real pain, but I’ll eventually crash and sleep the day away. Until then I will continue to help myself and conditions and hopefully I will stay at this level. Fingers crossed and a lil gypsy luck I will! 🙂

Water issues

I am going to be very honest in this post about the trouble I have urinating. I put a warning here for anyone who isn’t comfortable reading about this to not go any further.

I mentioned awhile ago I was having trouble emptying my bladder, now this issue has become a lot worse. I have no idea if this is ‘normal’ for other fibro, M.E patients but I really would be interested to find out if anyone else is going through the same thing.

I cannot urinate properly at all, and it’s now taking four/five trips to the toilet to empty my bladder. I can sit there for ten to thirty minutes feeling my bladder is going to burst but I cannot go. When I do go it’s a tiny amount, and the constant trips to the bathroom continue to be like this until my bladder is empty. It’s causing pain in my stomach, bladder and side as I constantly feel I need to urinate but it just won’t happen properly. Not to mention the energy I am using up getting to the bathroom and back. I have mentioned this to the doctor and my specialist, and they give me constant urine tests that come through clear. So it’s definitely not an infection doing it. I am starting to wonder if it’s connected to my conditions or it’s something else. I was thinking it could be my endometriosis but it’s been months now and way before it started playing up again.
I am at a total loss at what to do to help ease this situation. I will again mention it to my doctor on Friday when I have my phone appointment with her and see if she has any ideas. I really hope she does!

I was up most of last night with my nemesis painsomnia. It’s been a few weeks since the pain has been that bad, I was shaking and retching purely due to the severity of the pain. I will admit to bring disappointed this happened, I has hoped they were a thing of the past. I had been paining all day which isn’t unusual, but the pain hit like a punch in the stomach, quickly and with no warning. The pain is easier today though and I’m doing nothing to aggregate it!

Apart from that and my usual daily symptoms I am still feeling better. My neuro meds have made a huge difference and I wish I had been put on them months ago instead of having my old ones higher end to maximum dose. But hey, it was trial and error and I’m just glad I am on them now.

I phoned Atos yesterday and was told I could have an appointment next week, at there offices. I explained it was put down for a home visit and he questioned why and tried tripping me up about my doctors appointments, ‘how did I see them then if I’m mostly housebound?’ When I said my doctor comes to see me he soon changed his tune but his yeah yeahing annoyed me.. So I started saying it back and he stopped doing it.. Mean? Nope just standing up for myself, well laying in bed but the quote still stands 🙂 so he took my number and said I would hear from them in the next few weeks, which I really hope is true but if not I will be phoning in two weeks time to check. They are fed up with me calling every week asking about my claim, but I’m fed up of them taking five months to give me an appointment. It’s ridiculous and I know so many people who are waiting for much longer than I have. I wish I could go out to work, I don’t want to be like this I would be totally well again if I could but that’s not going to happen any time soon. I don’t like being made to feel I’m ‘scrounging’ as I’m not, I just want them to get off their backsides and do something. Here’s hoping!